Endometriosis is the worst thing I have ever experienced in my life. Endometriosis (say “en-doh-mee-tree-OH-sus”) is a problem many women have during their childbearing years.
It means that a type of tissue that lines your uterus is also growing outside your uterus. Everyone has a different severity of the endo, and I just happen to have a very severe case.
When you have endometriosis, the implants of tissue outside your uterus act just like the tissue lining your uterus. During your menstrual cycle, they get thicker, then break down and bleed. But the implants are outside your uterus, so the blood cannot flow out of your body. The implants can get irritated and painful.
Sometimes they form scar tissue. Scar tissue may make it hard to get pregnant. That is my biggest fear. The doctors said I will have a very hard time getting pregnant since there is scar tissue from this on my fallopian tubes. It is heartbreaking to me to know that I will most likely have to have in vitro fertilization.
The cause of this is unknown. With endo, I have terrible cramps. terrible isn’t even the word. Crippling is more like it. I miss school and work because I can’t even get out of bed due to the pain. It hurts to ovulate (yes I can feel that), it hurts to use the bathroom in any way, and sex is extremely painful. Sometimes the only thing I can do is cry because of the pain.
I had surgery for endometriosis in April, and the first period after the surgery wasn’t so bad. the next one was a nightmare. It seemed like the endometrium got mad that I had their friends taken out and ganged up on me! (unlikely but still!!) I have had it! It is to the point that I just want to try really hard for a kid right now and just have a hysterectomy after childbirth.
It is a touchy topic for me when people start telling me what I should and should not do about it and also when men tell me what they think it is and laugh (really LAUGH) about my fear of not being able to have a child. It infuriates me.
There is no cure for Endometriosis yet, but I hope they find one for future generations. I hope I have boys if I have kids so that I wont have a child with this.
Do you have Endometriosis? Do you know anyone with Endometriosis? How do you/they cope?